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Really Tired

Good evening, Lovelies!      It's been an extremely long day, even with a little nap. A very much needed one. I'm extremely happy with how it turned out; lots of friends, a slow pace (that goes with a Sunday), music, good conversation, and some delicious food! But here's the thing; it's been exhausting.      Do you ever feel that way? Even a good day drains the life out of you??? Well I'm sure I don't need to ask, that the answer is of course (you dumb blogger). But lately I've noticed how hard it is for me to admit or accept that I am tired, especially in a social setting, and I'm trying to allow myself to be tired-- if that makes sense. To just check out, and recharge my batteries in a quiet, solitary setting if needed. Although if I'm honest, sometimes that doesn't even quite do the trick.     That's life with a disability. Chronic pain is another issue that has recently become more pronounced for me. And I find I have to choose which acti...
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Tetra-Amelia Syndrome, the Spin!

 Hello Lovelies!      Below is the most amazing thing I've seen all day:) Indeed, he's an incredible individual. As an English language lover, let me break this down. "Tetra" is from the Latin, meaning "four". "Amelia", aside from its obvious charm, means "improve." So let's think about our man Prince Randion (coolest name ever) in a different way, as I believe is an improved viewpoint for all people with a disability. His "lack" of four extremities didn't detract from his experience at all. Indeed, finding ways to compensate for what wasn't there improved  Randion's life! One could argue it did so in four ways-- giving him mobility, adaptability, fortitude an purpose.     Wouldn't it be spectacular if everyone thought of a disability that way? That instead of the lack of something (a limb, neuro-typical thinking) or the presence of a condition (Cerebral Palsy, auto-immune difficulties, paralysis) what was em...
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I Love Surprises

 Lovelies,      It has been the most wonderful evening! My first ever Seder dinner at the church where I attend, and though I arrived a little late with my friend on this foggy, drizzly night, we were not the latest! That turned into an even bigger miracle when two friends, a couple I haven't seen or heard from in 10 years, whom I thought I had nothing in common with and had resigned myself to never seeing again-- were seated next  to me:) Oh the joy when I figured it out!     In my peripheral vision, I couldn't see their faces very well, and I was embarrassed to turn and look straight at them. I recognized them both as soon as the man opened his mouth:) Hearing a voice often helps me recognize a face. Have you ever noticed that in yourself?     My long-lost friend and his wife held court over the table for the rest of the night. They prompted conversations and helped serve the food! Sometimes I even felt like it was the three  of us lea...
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Even

 Hello Lovelies! A long-term friend sent me this and I just had to share it. Imagine if we the Disabled made a point of making the lives of the Able more difficult? Even for just a few hours? Society would collapse. Convenience for those without mobility aids or any other limitations is the thing ! Everything operates on this premise. Just imagine if it wasn't. Even for just a little while: <blockquote class="instagram-media" data-instgrm-captioned data-instgrm-permalink="https://www.instagram.com/reel/DWRfvovE-Wb/?utm_source=ig_embed&amp;utm_campaign=loading" data-instgrm-version="14" style=" background:#FFF; border:0; border-radius:3px; box-shadow:0 0 1px 0 rgba(0,0,0,0.5),0 1px 10px 0 rgba(0,0,0,0.15); margin: 1px; max-width:540px; min-width:326px; padding:0; width:99.375%; width:-webkit-calc(100% - 2px); width:calc(100% - 2px);"><div style="padding:16px;"> <a href="https://www.instagram.com/reel/DWRfvovE-...
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It's That Simple

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Happy to Be

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Ignorance is Remiss

 Hello Lovelies,      Having a very low moment:( It seems nothing has changed. There are regulations in place to accommodate the Disabled and (presumably) ensure that we are included in the day to day life of society--and yet society still refuses to acknowledge that we exist.     Earlier I read that a certain airline has made it possible for its back rows of seating to be folded down and turned into a bed for anyone who can pay for three seats. That extra room was intended  to make air travel more accessible to the Disabled. It was intended  for mobility aids and wheelchair users' comfort. How many ways can the airline industry tell us we're not welcome?     What if somebody without physical challenges bought the expansive seating just to accommodate them  while they spread out across the row? The flight attendant's jump seats are in the very back as well would the Prince of the Back Row block them as well?     Having jus...
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Aware

Hello Lovelies! This one hits close to home. Not only is CP one of my personal challenges,  I'm beginning to see the contributions I personally have made to my community. Maybe even society at large? Just by being more visible. My dearly unknown friend Michael reminded me to be aware of how I make an impact. <iframe src="https://www.facebook.com/plugins/video.php?height=476&href=https%3A%2F%2Fwww.facebook.com%2Freel%2F2654262524929360%2F&show_text=true&width=267&t=0" width="267" height="591" style="border:none;overflow:hidden" scrolling="no" frameborder="0" allowfullscreen="true" allow="autoplay; clipboard-write; encrypted-media; picture-in-picture; web-share" allowFullScreen="true"></iframe>
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